A 'temper with serious health issues, help sign a petition

[Costello]

Update: frontpaging this since deadline is coming near (August 9)

I just got a PM from GBAtemp regular and tgames site owner Mamule

My children and my wife have the Ehler Danlos syndrom, a rare genetic disease that destroys collagen. Collagen is everywhere in the body (bones, skin, organs...) so you can imagine the damage
http://en.wikipedia.org/wiki/Ehlers–Danlos_syndrome

In the world the only place to get treatment is in Paris. For the entire world. The hospital who is in charge of it wants to stop financing the health support so there will be no more treatments, refunds or anything.
Just so you realize, my 36 year old wife will be in a wheelchair within 5 years, my two children are under heavy medication and tons of health checks with specialists.

A petition is in place to attempt to revert the hospital's decision, but we need 50 000 signatures before August 9 in the hope that the french government will even look at the case.

http://www.petitions24.net/syndrome_dehlers_danlos_nous_disons_non_a_larret_du_diagnosti

I am so sorry to hear what is happening to your family Mamule, that is so horrible and unfair...
I will be signing the petition myself and in the name of my wife, this is the least I can do.
Please sign: http://www.petitions24.net/syndrome_dehlers_danlos_nous_disons_non_a_larret_du_diagnosti

*EDIT*

You might want to stick this translation of the form at the top:

First Name
Last Name
City
Country
Email
Publicize your signature? (Yes is selected by default)

You get an email, and the second link is for confirmation.

 

[TyBlood13]

I hope this petition doesn't go the way most do.

Best of luck to mamule's family and anybody else with Ehler Danlos whose lives will depend on this succeeding.

And of course, signed.

 

[DinohScene]

Signed!

 

[koimayeul]

I'm sorry this is happening to you.. Signed.

 

[Vengenceonu]

The world feels so cruel lately... signed.

 

[GameWinner]

Signed

 

[Hells Malice]

Signed of course. I'll try pass it around a bit, though I don't know that many people. Buut every sig counts.

I do hope others will do the same so this can reach at least the 50k. Further would be very nice.

 

[Zaertix]

Signed, and I'll promote it as much as I possibly can!

Keep your chin up!

 

[bowser]

I'm trying to sign but it keeps telling me the shipping address is incorrect. What am I doing wrong? I'm trying to enter the street name and house number.

 

[ThatDudeWithTheFood]

I'm trying to sign but it keeps telling me the shipping address is incorrect. What am I doing wrong? I'm trying to enter the street name and house number.

Email not address.

Signed.

 

[bowser]

Email not address.

Signed.

Oh, thanks!

 

[Yepi69]

I care for almost every temper.
Signed ofc.

 

[bowlofspiders]

I signed it. I hope all goes well for you and your family, and that the hospital changes their mind.

 

[Thomas83Lin]

Signed!

 

[broitsak]

Definitely signed, best of luck to you and your family, mamule. I'll also try my best to pass this on to others.

 

[JoostinOnline]

You might want to stick this translation of the form at the top:

First Name
Last Name
City
Country
Email
Publicize your signature? (Yes is selected by default)

You get an email, and the second link is for confirmation.

 

[Sicklyboy]

I may not know you, but like I said in Xuphor's thread, we're all part of this weird wonky GBAtemp family, whether I know you or not, and I always look out for family.

Signed, and best of luck mate.

 

[jonesman99]

Oh wow... I've heard of this before. There was a news story on it here in South Carolina a couple years, I don't remember what happened to them though... but I signed this so that way I know something will happen with this case. I wish and pray your family well.

 

[ElYubiYubi]

Signed!!

 

[Phoenix Goddess]

Signed. I wish there was more I could do, though...