Know Your Temps: Xuphor

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You're really starting to creep me out with how much you're saying that.:wtf:

Ah, I'm sorry, I'm just 13 years old, got a bit off of hand, after hearing the crisis. I'm sorry, again, just thought weirdness shall give a smile to your face. I'll just have to say how I love your bravery and your actions, Xuphor. I also wish to apologize to the members of GBAtemp, who also didn't like how I had my way of speech towards her. I really am upset over how she is going through, and I went over the limit. I again conclude, saying I am really sorry.
 
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What one place in the world would you like to see / visit before your time on Earth is up? I posted this before I got to see and read your other thread no ill will was meant by it.
Biggest asshole from your perspective on GBAtemp is?
Name 3 things besides food and water that you personally can absolutely not live with out.
Don't really have one.
I haven't looked at any member's assholes, so I can't say who has the biggest. If I had to guess, I'd say The Catboy. Not sure if that call will work due to the space in the name.... (Oh crap, it did. Sorry, didn't mean offense by that, was just joking.)
Uh.... literally: My Nebulizer, my "The Vest", and my medicines. Non-literally: my PC, my "fun box", and..... dunno..... my PS3.
Have you ever tried poutine?

Chili Cheese Fries?
Favourite food?
Had to look up what it was, so no. Sounds ok though.
Not a fan of chili, so eww.
Stomach's way off right now, can't answer that correctly at the moment. :(

Hello there stranger,
Ramen noodles or Ramen noodles?
Have you played FF7 Crisis Core? If you did, did you enjoy it?
Have you ever listened to songs from the bachata group Aventura?
Avenged Sevenfold or Bullet For My Valentine?
Creepiest dream you've had?
Would you be afraid to Parasail?
Btw just had some ramen noodles,maruchan branded lol been eating them for years.
Are we living in a Matrix?
Have you been in love before?
Hello
Meh and meh, not bad, not great.
No, N/A.
Never heard of them before now.
Between those two, A7X only by a little. There are better metal bands though.
Don't remember. We forget 95% of dreams just 10 minutes after we wake up.
I've done it before, so no. Was very fun.
That's the brand I eat to, when I eat them.
Beats me.
Yes. To an actual person/creature though? No. Fictional ones :(

I dont think anyone's asked this yet, what is your real name?:unsure:(Feel free not to answer the senseless ramblings of a peasant like me, just thought it would help us feel closer to you... unless Xuphor is your real name. If it is then Damn you had some cool parents:bow:)
Real name's Zoe, a few people here know that already, but I'm not sure exactly how many. Rather not share my last name at this moment. Once my sister steps in and verifies herself with p1ng, then she or I can, if I'm still able to post.
 
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Hello
It's the first time I talk to you directly.
Don't answer if you feel like not doing it in public.

You posted mostly in EoF, is it because you prefer to not take things too seriously?
Do you think you act the same way on internet and in real life?
Did you practiced a sport?
Could you live in a good living environment to prevent CF development?
Are you part of a CF helping organizations/association?
I've read now CF's Life expectancy can be 40-47 years old in some countries, almost twice your age. 25 is too short.
Did you do/practice/test a lot of different things, just to try as much things as possible in short period of time because you knew you had a shorter life than other people, or did you don't care and only did what you really liked?
Do you have any brother and sister (edit: ah you said you have a sister!)? if yes, are they in good health condition? someone else from your family with CF?
Do you have a boyfriend?
Did/do you talk about what will happen with family and friends?
Do they know about you talking about it here? what's their opinion?
What's your current feeling? Are you at ease, frustrated, sad, something else?
Can we write to you or your family ? (your real address. A staff member could take care of it and act as proxy to keep your privacy)


I didn't post anything in the other thread as I didn't know you, we never talked together before. I didn't know what to tell, so I thought I'll ask few questions I had here instead.
I wish you to be in best health for as long as possible and as much little suffering as possible.
Thank you for still coming here sharing your current situation and illness evolution with everyone in your current state.
Take care.
 
Real name's Zoe, a few people here know that already, but I'm not sure exactly how many. Rather not share my last name at this moment. Once my sister steps in and verifies herself with p1ng, then she or I can, if I'm still able to post.



Zoe huh. All girls who are named Zoe are short:blink: Coincidence?
 
Ah, I'm sorry, I'm just 13 years old, got a bit off of hand, after hearing the crisis. I'm sorry, again, just thought weirdness shall give a smile to your face. I'll just have to say how I love your bravery and your actions, Xuphor. I also wish to apologize to the members of GBAtemp, who also didn't like how I had my way of speech towards her. I really am upset over how she is going through, and I went over the limit. I again conclude, saying I am really sorry.
I didn't ask p1ng to delete those comments, I don't even know what the said.
But you don't need to be that sorry, all our bashing was in EoF, which isn't meant to be serious anyway. I always thought we were both just joking with each other.
p1ng did the same thing to me when I first started posting in the EoF, btw.
Hello
It's the first time I talk to you directly.
Don't answer if you feel like not doing it in public.
You posted mostly in EoF, is it because you prefer to not take things too seriously?
Do you think you act the same way on internet and in real life?
Did you practiced a sport?
Could you live in a good living environment to prevent CF development?
Are you part of a CF helping organizations/association?
I've read now CF's Life expectancy can be 40-47 years old in some countries, almost twice your age. 25 is too short.
Did you do/practice/test a lot of different things, just to try as much things as possible in short period of time because you knew you had a shorter life than other people, or did you don't care and only did what you really liked?
Do you have any brother and sister? if yes, are they in good health condition? someone else from your family with CF?
Do you have a boyfriend?
Did/do you talk about what will happen with family and friends?
Do they know about you talking about it here? what's their opinion?
What's your current feeling? Are you at ease, frustrated, sad, something else?
Can we write to you or your family ? (your real address. A staff member could take care of it and act as proxy to keep your privacy)
writing these questions was emotionally harder than I thought.
I didn't post anything in the other thread as I didn't know you, we never talked together before. I didn't know what to tell, so I thought I'll ask few questions I had here instead.
I wish you to be in best health for as long as possible and as much little suffering as possible.
Thank you for still coming here sharing your current situation and illness evolution with everyone in your current state.
Take care.
Hello
Yes it is. Then again, it's kind of a good thing when a Global Moderator doesn't need to "have a talk" with a regular member, isn't it? :P
I'll answer, it's KYT. There are very few things I won't, I even said I can't live without my "fun box" earlier.
USN and EoF were my biggest places, but yea, EoF was more. As for why..... well, it was (and still is) the only forum I can find where you can say pretty much anything you want, and everyone knows it's all meant to not be serious that doesn't have porn in it. You wouldn't believe how hard those types of forums are to find.
I know for a fact I do. I you don't like me on the internet, you won't like me RL.
Did you practiced a grammar? :P No, I wasn't able to practice any sports long-term due to my CF. Heavy exercise, like all sports, does hell on my breathing. I have parasailed, jet-ski'd, water-skied, snowboarded, and hang glided before though. I wouldn't call any of those real "Sports" though, with snowboarding being a possible exception.
Yes, one with completely controlled humidity, temperature, high-quality air filters, and everything hypo-allergenic. The cost of such a place would be insane, as most temperature and humidty control devices in houses take a long time to take effect, I'd need them instant.
Ironically, I can't be part of the help, due to my CF preventing me from doing a lot of heavy activity. I once tried the "CF March for the Cure Great Strides" run, but nearly collapsed a quarter way through due to insane coughing.
I agree. However, be aware that those that live that long likely spend their last few years in a hospital, and had succefull transplants when they were around my age.
Just did what I wanted/what I liked.
Sister, she has no health abnormalities at all. No CF, no Runt-ness, etc.
Considering I look somewhere around 6-8 years old and have insanely low hormones/"sex-drive" because of that (maybe vice-versa), no.
Family yes.
They don't care, I could post nudes of myself and it wouldn't phase them. (No, I won't. It was just an example.)
Impatient over the fact FFXIV:ARR on PS3 has taken 5 days so far to download, and likely won't be done today either. I hate slow internet :(
No, I'd prefer not to. All it takes is one person on these forums that doesn't like me that pretends he/she does, and I'll get something really bad in the mail.
It usually is.
Better than nothing :)
Thank you.
Felt I had to and wanted to, I didn't want to suddenly vanish without a single word from a place where a number of people like having me around.
Take care to you too.
 
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Zoe huh. All girls who are named Zoe are short:blink: Coincidence?
I've never know any other person named "Zoe", I've only know a "Zoey", but that was just one woman who was 5 feet, 8 inches.
 
"Did you practiced a grammar?", hey, I guess it's French grammar only, sorry!
in French, you say you are practicing a sport, or can also say "do some sport".
Some questions was maybe not well asked, or you answered something else on purpose ;) but thanks for replying.
 
"Did you practiced a grammar?", hey, I guess it's French grammar only, sorry!
in French, you say you are practicing a sport, or can also say "do some sport".
Some questions was maybe not well asked, or you answered something else on purpose ;) but thanks for replying.
With you I answered all the questions seriously....... Which one/s do you think I wrote something else on purpose on?:(

Sorry about the grammar thing, Costello and me also had a French/English thing go awry recently.
 
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With you I answered all the questions seriously
yes, I thank you for that.

There were three questions, but I take it's because I didn't write them correctly.
- I wanted to know if you already had the chance to live in a proper controlled environment (not if you wanted one). but if you want one, it answered the question.
- the Organization question was more for being part of the people helped by an organization, like them providing drugs and care when you need it (to help you financially for everyday cares, or helping for controlled environment installation for example), or even just being part of a group of people with CF whom you could talk to. People are donating to these organizations, they can use their funds to help the one in need since the child's birth to adult age.

- "What's your current feeling? Are you at ease, frustrated, sad, something else?" was about what the doctor told you about having only one month left. how do you feel about that (sudden) news? what do you feel knowing it? Some people are afraid to die "one day" without knowing when or how.
it wasn't a question about how you felt waiting to play FF14 :p
 
Code:
With you I answered all the questions seriously
yes, I thank you for that.

There were three questions, but I take it's because I didn't write them correctly.
- I wanted to know if you already had the chance to live in a proper controlled environment (not if you wanted one). but if you want one, it answered the question.
- the Organization question was more for being part of the people helped by an organization, like them providing drugs and care when you need it (to help you financially for everyday cares, or helping for controlled environment installation for example), or even just being part of a group of people with CF whom you could talk to. People are donating to these organizations, they can use their funds to help the one in need since the child's birth to adult age.
- "What's your current feeling? Are you at ease, frustrated, sad, something else?" was about what the doctor told you about having only one month left. how do you feel about that (sudden) news? what do you feel knowing it? Some people are afraid to die "one day" without knowing when or how.
it wasn't a question about how you felt waiting to play FF14 :p
Oh, no. I just live in a standard house, it doesn't have the high end climate control that would be ideal.
Patients of medical conditions that have big charity fundraiser/organizations often do not see any of that money, as it all goes to (supposedly) finding an actual cure. As for organizations for providing medicine prices and the like, I'm not part of any, as my insurance (up until now) did all that very well.
It's not sudden, if you'd read my other thread, you'd know I've known about it since late March, so I've known of it for a while. When the doctor told me back then, of course I felt as any other person would, stunned/sad/etc. He's been a good doctor my whole life though, so when he said mid-late August will be my last month, I felt that was accurate. As for not knowing exactly when in August, that annoys me sure, but I know they can't give a better prediction than that.
 
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Are there any plans for your family/friends to throw you an early birthday/goodbye/put me in your will Party:grog:. All your closest(and not so closest) friends celebrating for what should be a celebration to you in the next life :P. If not then ill get started now. Would you prefer barney or a clown.:toot:
 
Are there any plans for your family/friends to throw you an early birthday/goodbye/put me in your will Party:grog:. All your closest(and not so closest) friends celebrating for what should be a celebration to you in the next life :P. If not then ill get started now. Would you prefer barney or a clown.:toot:
No, I personally do not want to have one.

im going to do something different.
i want you to answer a question of your own, which you wish was asked. :)
.......uh.......*crickets chirping*:mellow:
 
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Are you hoping to be reincarnated as that imp looking orange rachet from rachet and clank looking wombat thing? Or maybe a stripper pole. That sounds good.:unsure:
 
who is the biggest fanboy on gbatemp.
No clue, don't care.
Are you hoping to be reincarnated as that imp looking orange rachet from rachet and clank looking wombat thing? Or maybe a stripper pole. That sounds good.:unsure:
Not any form of imps, no. I wouldbn't mind being reincarnated as my creation in my avatar and signature though.
 
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