Alright, I keep bringing it up, so a part of me apparently wants to tell the story.
Suppose after being here four years I might as well tell you people about it.
I was born with a condition called spina bifida.
Most kids born with this condition never walk.
Most of those who do have to use leg braces or crutches of some sort.
But I was extremely lucky in a number of ways.
Being born by c-section, in one of the leading hospitals for neonatal neurosurgery in the world, and taken care of by a team of incredible surgeons.
So I walk normally. You can't even tell that I have a problem most of the time. I've had a lot of people laugh in my face when I mentioned having back trouble because it's that unnoticeable.
My first surgery (to move the spinal cord back within the spine and close the wound) was at seven days old.
The next was at twelve years when I started getting tall. you see, the scar tissue from the first surgery was entwined or 'tethered' in the nerves, and stretching my spinal cord like a rubber band. Less than a month after that surgery I shot up four inches in height.
And technically speaking this procedure should have been repeated some time before my 20s.
It makes me look rather stocky because I'm supposed to be about three inches taller. That's how much the nerves are being stretched right now.
When I mention that I'm hurting, this is usually the cause of it.
It hasn't stopped me from doing many things. Though the Army wouldn't take me, and I was never allowed to play football (two things expected of the boys in my family) I still went into the family business, building houses. Finished more than 100 before the housing market in the US collapsed.
Eventually I'll probably have to accept being called "disabled".
And eventually if I don't have this problem corrected the nerves are likely to snap, and I'll wind up in a wheelchair or dead.
But it's just one more thing I've railed against for years, and don't intend to stop any time soon.
Suppose after being here four years I might as well tell you people about it.
I was born with a condition called spina bifida.
Most kids born with this condition never walk.
Most of those who do have to use leg braces or crutches of some sort.
But I was extremely lucky in a number of ways.
Being born by c-section, in one of the leading hospitals for neonatal neurosurgery in the world, and taken care of by a team of incredible surgeons.
So I walk normally. You can't even tell that I have a problem most of the time. I've had a lot of people laugh in my face when I mentioned having back trouble because it's that unnoticeable.
My first surgery (to move the spinal cord back within the spine and close the wound) was at seven days old.
The next was at twelve years when I started getting tall. you see, the scar tissue from the first surgery was entwined or 'tethered' in the nerves, and stretching my spinal cord like a rubber band. Less than a month after that surgery I shot up four inches in height.
And technically speaking this procedure should have been repeated some time before my 20s.
It makes me look rather stocky because I'm supposed to be about three inches taller. That's how much the nerves are being stretched right now.
When I mention that I'm hurting, this is usually the cause of it.
It hasn't stopped me from doing many things. Though the Army wouldn't take me, and I was never allowed to play football (two things expected of the boys in my family) I still went into the family business, building houses. Finished more than 100 before the housing market in the US collapsed.
Eventually I'll probably have to accept being called "disabled".
And eventually if I don't have this problem corrected the nerves are likely to snap, and I'll wind up in a wheelchair or dead.
But it's just one more thing I've railed against for years, and don't intend to stop any time soon.